Be a Voice for Change
Join the cause that stands for equal opportunities for everyone.
At Easterseals Arkansas, we partner with Easterseals National as an Easterseals affiliate. These advocacy initiatives are spearheaded by Easterseals National and not our local issues alone.
We understand that securing a life of equity, accessibility, and empowerment for individuals with disabilities requires more than just services and programs; it demands systemic change through informed and collective advocacy. Your voice can be a powerful tool in this dynamic and inclusive movement, reaching out to the corners of society where it is needed the most.
Standing at the forefront of change, we tirelessly work to influence policy on health, education, employment, transportation, and other vital services that anchor a dignified life.
Latest Updates
In a recent monumental stride, representatives from Easterseals had productive dialogues with policymakers in Washington, D.C., bringing to the forefront critical issues around accessible transportation and employment for people with disabilities.
Delve deeper into these discussions and stay informed through a series of engaging videos from the event.
Advocacy News
Our dedication to a more inclusive society is reflected in our meticulous research showcased in the State of Disability Equity and Access Report. This comprehensive document covers the present scenario of equity and inclusion in the United States, shedding light on pivotal domains such as education, healthcare, transportation, and employment for over 61 million individuals with disabilities.
Championing Racial Equity
We stand unyielding in our commitment to foster a society where every individual, regardless of their racial background or ability, enjoys equal opportunities and respect. It is a grim reality that a significant portion of individuals living with disabilities are also grappling with racial inequities.
We are here to uplift BIPOC (Black, Indigenous, and People of Color) voices in the disability community, offering a platform for their stories to be heard, and ensuring informed and tangible support reaches them.
Join Our Advocates
The journey towards a more inclusive future is fueled by united voices advocating for justice and equal opportunities. Join our email list today to receive timely alerts about pivotal advocacy issues both nationally and in your area.
By lending your voice, you become a vital part of a movement that not only identifies and vocalizes the pressing issues but also acts as a beacon of change, heralding a future of inclusivity and respect.
Become a part of the change. Fill out the form to join now!
Advocacy Resources
Legislative Landmarks
Easterseals has been active in public policy advocacy since our founder, Edgar Allen, lobbied the Ohio Legislature to fund appropriate services for children with disabilities in the 1920s. We have worked with federal, state and local officials and agencies since then to advocate for laws and programs that help people with disabilities achieve independence. Children and adults with disabilities disproportionately rely on government programs in order to access education, health care, housing, transportation and employment services.
Easterseals continues to actively support and promote federal legislation that helps people with disabilities achieve independence.
2016 – The Older Americans Act Reauthorization Act is a critical piece of legislation that reauthorizes supportive services for older adults through Area Agencies on Aging, family caregiver supports, nutrition programs, transportation services, and the Senior Community Service Employment Programs (SCSEP).
2014 – The Achieving a Better Life Experience (ABLE) Act creates tax-free savings accounts to help many families with children with significant disabilities to save for that child’s future living expenses without jeopardizing their government benefits.
2014 – The Workforce Innovation and Opportunity Act updates the U.S. job training and employment system, including the vocational rehabilitation program and other employment services for people with disabilities.
2010 – Patient Protection and Affordable Care Act and reconciliation measure enacted. This historic effort to reform the nation’s health care system makes insurance coverage available for an additional 32 million Americans.
2010 – “Rosa’s Law” will replace usage of the term “mental retardation” in federal statutes and programs with the more appropriate “intellectual disability.” This change is designed to support the dignity of people with intellectual disabilities who have been stigmatized by the term “mental retardation.”
2010 – Signed into law on October 8, the Twenty-First Century Communications and Video Accessibility Act greatly increases access to telecommunications for people with disabilities through expanded relay operator usage, access to advanced telecommunications equipment, and increased closed captioning and video description services.
2009 – State Children’s Health Insurance Program (SCHIP) Reauthorization for 4.5 years and provide coverage to approximately 4 million additional children.
2008 – The ADA Amendments Act, legislation to restore the intended coverage of the Americans with Disabilities Act prohibiting discrimination against people with disabilities and providing millions of Americans the chance to participate fully in life.
2006 – The Lifespan Respite Care Act was signed into law to ensure that community-based respite care services were more accessible and affordable to family caregivers, regardless of the care recipient’s or caregiver’s age or disability.
2004 – Individuals with Disabilities Education Act (IDEA) reauthorized and amended to ensure improved educational services to students with disabilities.
2000 – Developmental Disabilities Assistance and Bill of Rights Act of 2000 enhances the Developmental Disabilities Councils, Protection and Advocacy Systems, University Affiliated Programs, and Projects of National Significance. The revised law includes a provision authored by Easterseals and the American Association of University Affiliated Programs that creates training programs for early childhood education personnel that must be conducted in collaboration with programs such as Easterseals Child Development Centers.
2000 – Older Americans Act Amendments include a new National Family Caregiver Support Program, which provides funding to state and area agencies on aging, and other organizations they contract with, to provide systems of support services to family caregivers. The reauthorized OAA also includes includes an innovation grant program to provide competitive grants to foster the development and testing of new approaches to sustaining the efforts of families and other informal caregivers of older individuals.
1999 – Ticket to Work and Work Incentives Improvement Act of 1999 removes barriers that have required people with disabilities to choose between health care coverage and work.The law also increases consumer choice in obtaining rehabilitation and vocational services through the establishment of a Ticket to Work and Self-Sufficiency program.
1998 – The Assistive Technology Act of 1998 continues federal funding for states to improve and expand access to assistive technology devices and services for people with disabilities.
1997 – Individuals with Disabilities Education Act Amendments of 1997 reauthorized the IDEA to strengthen and improve education programs and services for children with disabilities.
1997 – State Children’s Health Insurance Program (SCHIP) enacted to allow the states, with support from the federal government, to design insurance programs for children of working families who earn too much to qualify for Medicaid, but may not be able to purchase health care insurance on their own.
1996 – Health Insurance Portability and Accountability Act of 1996 improves access to health care for 25 million Americans by guaranteeing that private health insurance is available, portable, and renewable; limiting pre-existing condition exclusions; and, increasing the purchasing clout of individuals and small employers through incentives to form private, voluntary coalitions to negotiate with providers and health plans.
1996 – Child Abuse Prevention and Treatment Act (CAPTA) Amendments of 1995 includes a new family resource and support program that supports state efforts to develop, operate, expand and enhance a network of community-based, prevention-focused, family resource and support programs which would be equipped to address, among other things, the additional family support needs of families with children with disabilities.
1996 – The Developmental Disabilities Assistance and Bill of Rights Act Amendments enhance Developmental Disabilities Councils, Protection and Advocacy Systems, University Affiliated Programs, and Projects of National Significance.
1996 – Telecommunications Act of 1996 ensures equal access to telecommunications for people with disabilities.
1996 – Fiscal Year 1997 Department of Veteran’s Affairs and Housing and Urban Development Appropriations includes a provision to initiate Veterans benefits for the children of Vietnam-era who were born with spina bifida as a result of their parents’ exposure to Agent Orange. Also includes provision that prohibits insurance companies from having lower lifetime caps for treatment of mental illness versus other disabilities.
1994 – Technology-Related Assistance for Individuals with Disabilities Act reauthorized the 1988 “Tech Act,” which was established to develop consumer-driven, statewide service delivery systems that increase access to assistive technology devices and services to individuals of all ages with disabilities. The 1994 amendments emphasize advocacy, systems changes activities and consumer involvement.
1993 – Elementary and Secondary Education Amendments of 1993 reauthorized the Elementary and Secondary Education Act (ESEA). The ESEA provides the framework of federal grants to states for elementary and secondary education programs. Among other provisions, the 1994 amendments include a provision sponsored by Senator Tom Harkin (D-Iowa) to establish statewide systems of support for families of children with disabilities.
1993 – Fiscal Year 1994 Treasury, Postal Service, General Government Appropriations includes an amendment to establish a new formula for non-profit rate setting, under which third class non-profit rates will increase four percent per year for the next six years.
1993 – National and Community Service Trust Act of 1993 established a national service program, including tuition assistance and a living allowance for individuals age 17 and older who volunteer part-time or full-time in community service programs.
1993 – National Voter Registration Act requires states to liberalize their voter registration rules to allow people to register to vote by mail, when they apply for driver’s licenses or at offices that provide public assistance.
1992 – The Rehabilitation Act Amendments include changes intended to increase access to state vocational rehabilitation systems, to enable consumers to have greater control in the rehabilitation process, and to provide opportunities for career advancement.
1992 – The Older Americans Act Amendments The Older Americans Act authorizes a variety of programs and support services, including those administered by state and area agencies on aging, for the nation’s elderly.
1991 – Individuals with Disabilities Education Act of 1991 enhances infants and toddlers program and extends the IDEA support programs.
1990 – The Individuals with Disabilities Education Act Amendments (IDEA) reauthorize programs under the Education of the Handicapped Act to improve support services to students with disabilities, especially in the areas of transition and assistive technology.
1990 – The Americans with Disabilities Act (ADA) guarantees the civil rights of people with disabilities by prohibiting the discrimination against anyone who has a mental or physical disability in the area of employment, public services, transportation, public accommodations, and telecommunications.
1990 – The Television Decoder Circuitry Act requires closed caption decoders to be part of all televisions with screens 13 inches and larger.
1989 – The Job Training and Basic Skills Act revises Title II of the Job Training Partnership Act (JTPA), which improves services to economically disadvantaged adults and youths facing barriers to employment and recognizes disability as being a barrier to employment.
1988 – The Fair Housing Act Amendments add persons with disabilities as a group protected from discrimination in housing and ensure that persons with disabilities are allowed to adapt their dwelling place to meet their needs.
1988 – The Civil Rights Restoration Act amends the Rehabilitation Act’s definition of an individual with a disability and defines coverage of Section 504 as broad (e.g., extending to an entire university) rather than narrow (e.g., extending to just one department of the university) when federal funds are involved.
1988 – Temporary Child Care for Children with Disabilities and Crisis Nurseries Act established grants for respite services and crisis nurseries.
1988 – The Technology-Related Assistance for Individuals with Disabilities Act provides grants to states to develop statewide assistive technology programs.
1988 – Protection and Advocacy for Mentally Ill Individuals Amendments Act of 1988 extends protection and advocacy services to individuals with mental illness.
1986 – The Education of the Handicapped Act Amendments amends the act to include grants for states to develop an early intervention system for infants and toddlers with disabilities and to establish a preschool program for children with disabilities between the ages of 3 and 5 years.
1986 – The Handicapped Children’s Protection Act allows the award of reasonable attorneys fees to parents who prevail in due process proceedings under the Education of the Handicapped Act.
1986 – The Air Carrier Access Act prohibits discrimination against persons with disabilities by all air carriers and provides for enforcement under the U.S. Department of Transportation.
1984 – The Voting Accessibility for the Elderly and Handicapped Act requires that registration and polling places for federal elections be accessible to persons with disabilities.
1980 – The Civil Rights of Institutionalized Persons Act authorizes the U.S. Department of Justice to sue states for alleged violations of the rights of institutionalized persons.
1978 – The Rehabilitation and Developmental Disabilities Amendments establish the National Institute of Handicapped Research and new programs for people with disabilities, including comprehensive service centers, independent living projects, recreation programs, and pilot programs for employment.
1975 – The Education for All Handicapped Children Act mandates a free, appropriate public education for all children with disabilities.
1975 – The Developmental Disabilities Assistance and Bill of Rights Act funds services for persons with developmental or severe long-term disabilities and establishes a system of protection and advocacy organizations in each state.
1973 – The Rehabilitation Act prohibits discrimination against otherwise qualified persons with disabilities in any program or activity receiving federal funds and in executive agencies and the Postal Service.
1968 – The Architectural Barriers Act requires all buildings constructed, altered, or financed by the federal government after 1969 to be accessible and usable by persons with physical disabilities.
Advocacy Resources
Public Policy Priorities
Easterseals is dedicated to ensuring that the rights and resources that people with disabilities rely on are protected and expanded. To achieve that goal, we focus our efforts to protect, renew and expand access to effective services and supports for individuals with disabilities, older adults, and veterans to help them reach their potential and thrive in their communities.
Public Policy Priorities
We envision a nation whose high expectations for all people with disabilities make possible the fulfillment of academic potential, competitive employment in the community, active engagement in civic life, and full inclusion in society.
The following agenda for the 117th Congress was developed in collaboration with other organizations that hold similar values.
Federal Fiscal Policy Priorities
We support federal funding for the program supports and services that are needed to enable people with disabilities and their families to be fully included in society.
Structural changes or reductions in federal entitlement spending threaten our constituents. Medicaid, Medicare, Social Security, and Supplemental Security Income (SSI) remain major targets to secure deficit reduction. Medicaid finances lifesaving health care and long term supports and services and the lives of the people receiving those supports are inextricably linked to any shift in Medicaid policy – at either the federal or state level.
The very lives of our constituents are at stake in these policy deliberations. Some of the changes that have been proposed to the Social Security system, such as reduced benefits and increased retirement ages, could have a devastating impact on beneficiaries.
Our public policy goals include (but are not limited to) the following.
Budget, Entitlements and Appropriations:
- Adopting a budget resolution that sets annual revenue and spending limits. The budget resolution is the blueprint for discretionary and entitlement spending.
- Strengthen, not weaken, vital entitlement programs such as Social Security, Medicaid, Medicare, SSI, Temporary Assistance for Needy Families (TANF), and SNAP (food stamps).
Revenue and Tax Policy: Reform tax policy in a manner that raises sufficient revenues to finance the federal government’s role in providing essential supports, services, and benefits for people with disabilities and their families over the lifespan.
Programmatic Agenda
To further the promise of the Americans with Disabilities Act and the U.S. Supreme Court’s Olmstead decision, major programs which provide supports and services must be aligned with principles of encouraging and supporting nondiscrimination; full, meaningful inclusion in community life; and economic self-sufficiency. Such programs also must be accessible and available to those who need them and must be dependable, even in difficult economic times. Medicaid and Social Security, including Supplemental Security Income (SSI), provide crucial supports to our constituents; potential changes to either program, therefore, require significant attention to the potential impact on people with disabilities.
Our public policy goals include (but are not limited to) the following.
Civil Rights:
- Protect against forms of discrimination based on disability, ethnicity, race, sex, pregnancy, gender identity or expression, sexual orientation, religion, familial status, age, language, national origin, genetic information, or any other protected status.
- Protect and promote stronger enforcement of existing civil rights laws for people with disabilities, particularly the Americans with Disabilities Act (ADA); Individuals with Disabilities Education Act (IDEA); Fair Housing Act; Civil Rights of Institutionalized Persons Act (CRIPA); the Rehabilitation Act; Help America Vote Act (HAVA); National Voter Registration Act (“motor voter”); Matthew Shepard and James Byrd, Jr. Hate Crimes Prevention Act; Genetic Information Nondiscrimination Act; Air Carrier Access Act; and Section 1557 of the Patient Protection and Affordable Care Act.
Voting Rights Reform: Provide strong enforcement of and adequate funding for the Help America Vote Act (HAVA) to address the right of people with disabilities to vote privately and independently in any federal election, to rectify continuing failures to meet the provisions of the law, and to make recommendations for improvement.
Community-Based Long Term Supports and Services: Expand, modernize, and, where appropriate, maintain national policies that provide individualized supports. Such supports should encourage individual control of services, self-sufficiency, and personal responsibility among our constituents. Such a system should avoid the need for people to impoverish themselves to qualify for services. Supports and services must be:
- Person-centered and self-directed;
- Inclusive of personal assistance services and technology appropriate for each individual;
- Designed and implemented to meet individual needs;
- Widely accessible; and
- Provided in the community in inclusive and integrated settings.
Developmental Disabilities: Ensure that the work of the three Title I DD Act programs (University Centers for Excellence in Developmental Disabilities, Protection and Advocacy Agencies, and State Councils on Developmental Disabilities) reaches and sustains the goals of self-determination, inclusion, and integration for people with IDD in community settings.
Direct Support Professionals: Ensure adequate funding so that direct support professionals are paid a living wage, including appropriate benefits.
Education: Ensure non-discrimination in special education in order to avoid inappropriate over- or under-identification of disability and the overuse of segregated settings or disciplinary actions for students of diverse backgrounds.
Discipline, Restraint, Seclusion, and Aversive Interventions: Prohibit harmful disciplinary practices such as unwarranted suspensions, expulsions, and referrals to the juvenile justice system and require schools to work to de-escalate minor school infractions rather than call for police department assistance.
Early Childhood, Early Intervention, and Preschool Programs: Mandate the availability of early intervention programs under IDEA (Part C); Increase funding for early intervention and preschool programs; and Enhance the development, implementation, and execution of Child Find Programs and other related resources to ensure early detection and early access to services.
Individuals with Disabilities Education Act (IDEA): Reauthorize IDEA in a way that enhances the guarantee of a free appropriate public education (FAPE) in the least restrictive environment (LRE).
Every Student Succeeds Act (ESSA): Ensure full implementation of ESSA through appropriate funding, enforcement, and monitoring of all provisions, including:
- Full participation of students with disabilities in assessment, accountability systems, and reporting systems, including transparency about school performance for students with disabilities in state and local education agencies (LEAs) report cards;
- Required assessments that are aligned with the challenging state academic standards for the grade in which the student is enrolled;
- Appropriate justification for State Education Agencies(SEAs) to exceed the 1% cap on the number of students with the most significant cognitive disabilities who take an alternate assessment aligned with alternate academic achievement standards; and
- Funding and full implementation of the early childhood provisions.
Postsecondary Education: Ensure students with disabilities, including those with intellectual and developmental disabilities, have access to all forms of federal financial aid. Ensure that all students with disabilities have access to academic courses and the full range of campus programs and activities, including integrated housing.
Education Personnel: Expand and improve in-service and pre-service personnel preparation under Part D of IDEA, ESSA, and the HEOA to address the growing special education workforce crisis.
Competitive Integrated Employment: Support implementation of the Workforce Innovation and Opportunity Act (WIOA), toward maximizing employment outcomes, and improving transition outcomes, for people with IDD. Build infrastructure and create incentives for private sector employers or other solutions that will expand work opportunities for individuals with significant disabilities in competitive integrated employment.
Vocational Rehabilitation: Increase funding for state vocational rehabilitation (VR) programs significantly above the required Consumer Price Index (CPI) level to ensure investment in transition to postsecondary opportunities, supported employment, customized employment, and workforce development programs that help our constituents find and keep jobs and have more career options; and build infrastructure and create incentives for employers that will expand work opportunities.
Employment Standards and Benefits: Support policies that expand workplace flexibility; Assure that part-time, supported, or periodic employees are included in any proposal that expands or extends fringe benefit coverage; and expand access to family and medical leave and support paid leave policies, including by mandating employers to provide a reasonable amount of paid sick leave and requiring payers to recognize these costs in their reimbursement rates.
Affordable Care Act (ACA): Ensure that the ACA is not further diminished through partial or full repeal or regulatory changes. In particular, the provisions that meet the needs of our constituents for quality, accessible, appropriate, comprehensive, affordable, portable, and non-discriminatory coverage and benefits must be protected.
Medicaid/Medicare/Children’s Health Insurance Program (CHIP): Protect existing health care entitlements under Medicare and Medicaid, including Medicaid expansion.
Mental/Behavioral Health: Ensure that the most appropriate mental/behavioral health services are widely available to people with IDD who need them across the lifespan.
Medicaid: Maintain the individual entitlement to a full range of Medicaid health and LTSS for all eligible children and adults with disabilities. Oppose Medicaid deconstruction or any moves to provide states with flexibility that eliminates basic protections for eligible individuals with developmental disabilities or the imposition of entitlement caps, Medicaid block grants, per capita caps, allocations, allotments, limiting provider taxes, and other proposals that shift costs to states or other mechanisms that cause reductions.
Home and Community-Based Services (HCBS): Ensure full implementation and enforcement of the HCBS settings rule for both residential and non-residential services, including adequate funding, technical assistance, appropriate individualized transportation options to ensure community integration, and other necessary supports to states.
Social Security/Income Maintenance: Protect and expand the effectiveness of income support programs and their related health coverage programs in the Social Security Act, including the Old Age, Survivors, and Disability Insurance (Title II) programs, SSI (Title XVI) program, Medicare (Title XVIII), and Medicaid (Title XIX).
Emergency Management: Assure that all federal agencies, entities receiving federal funds, service providers, and other relevant organizations are held accountable for developing and participating in coordinated approaches to disaster and emergency preparedness that are efficient, non-duplicative, and address the needs of people with disabilities.
Family Support: Support federal initiatives that recognize the important role of families and the need for comprehensive family supports and ensure that any such initiatives explicitly recognize that they cannot be a substitute for creating a national solution to provide appropriate long term supports and services for persons with disabilities.
Housing: Significantly increase funding for, and protect the integrity of U.S. Department of Housing and Urban Development (HUD) programs, including programs that specifically support people with disabilities, such as the Section 811 Supportive Housing for Persons with Disabilities program and the Section 811 Mainstream Voucher program, and other important HUD programs, including the Section 8 Housing Choice Voucher program, the HOME Investment Partnerships program, and the Community Development Block Grant program and increase funding for U.S. Department of Agriculture housing programs as well as all other federal housing programs providing funding for people with disabilities.
Technology: Ensure that people with disabilities have information about and access to affordable, appropriate, and accessible technology throughout their lifetimes to fully participate in society.
Transportation: Increase funding for the Federal Transit Administration programs, including mass transit programs (including paratransit), Section 5310 program for the enhanced mobility of seniors and people with disabilities, and other critical programs.
Partnerships
The Arc, AAIDD, ANCOR, ASA, ASAN, Easterseals, NACDD, TASH, and UCP each have a rich history of building and participating in coalitions and collaborating with each other and with other organizations in pursuit of national public policy goals. Working together, we lead efforts in informing policymakers of the vast unmet needs of our constituents and in mobilizing people with disabilities, their families, and our chapters and affiliates as active players in national public policy. Many are leading members of the Consortium for Citizens with Disabilities (CCD). CCD is a Washington, DC-based coalition of more than 100 national organizations representing consumers, family members, providers, professionals, and other advocates. Because our constituents share the same needs and interests as other people, The Arc, AAIDD, ANCOR, ASA, ASAN, Easterseals, NACDD, TASH, and UCP also participate in non-disability coalitions which help further our policy goals.
Read the full document of policy priorities (many of which are not list here).
Advocacy Resources
White House Accessibility
Among the many changes the new administration made in its first week was to make a commitment to ensure its site is accessible to all Americans. They are asking for input from the public, especially people with disabilities.
The White House is Asking for Input from People with Disabilities
by Beth
The White House on a bright, partly cloudy dayAmong the many changes the new administration made in its first week was to make a commitment to ensure its site is accessible to all Americans. A White House Accessibility Statement released this past week says its Whitehouse.gov site will conform to the Web Content Accessibility Guidelines (WCAG) version 2.1, level AA criteria — guidelines that not only help make web content accessible to users with sensory, cognitive and mobility disabilities, but ultimately to all users, regardless of ability.
The statement says its ongoing accessibility efforts will “work toward making WhiteHouse.gov as accessible as possible,” and, to that end, they are looking for help from experts: us!
You read that right. Users with disabilities are encouraged to send comments on how to improve the site’s accessibility, and here’s how you can :
- Switchboard: 202-456-1414
- TTY/TDD Phone Numbers (for the Hearing Impaired Only): 202-456-6213
- Visitors Office: 202-456-2121
Let’s chime in, shall we? Let freedom ring!